What do you take for granted?
That food has a taste? That you get it with your mouth? That you can control how much and how fast you take it in?
Yesterday Hale ate his first food. With his actual mouth. Mother's milk, in a bottle. Sweet/sour Mimi, the crazy* night nurse gave him two full feedings with a bottle. "Nippling him," is how they say it.
(*crazy=awesome, in a crazy way. you should meet her. you'd like her.)
The deal is, the wiring inside his head (or any kid's, at 34 weeks' gestation) generally isn't squared away for the holy triumvirate: Suck+Swallow+Breathe. He can reliably do any two, and at this point requires some special attention to ensure he doesn't get himself into any trouble gulping that stuff down.I got to feed him about a half-feeding (20ml, or about 2/3 oz--he's getting about 40ml per feeding, eight times a day) with a bottle yesterday. It made me nervous, the nurse saying, things like, 'watch you don't drown him, now!"
Takes concentration not to drown your son. Pacing.
He's gaining weight pretty fast (4lbs 13oz today), and now with this starting to eat thing, we're about equal parts excited and scared they're going to send the pup home with us sooner rather than later.
Nobody's given us a timeline, or any kind of targets exactly (like a weight, say, 6lbs, that seems to be in lots of people's heads) for when he'll be able to go home.
Pretty much, when Hale is able to regulate his own temperature reliably (check, basically), gain weight from food he's taking by mouth (well under way), and more or less stop with the little 'forgetting to breathe' and 'not bothering to have a heartbeat' episodes (which he's improving at at a rate which seems slow but which doesn't seem to alarm anyone who ought to know better)--then he'll get out of there.
Oh, and I literally just this minute found this out: He also has to nipple from a breast or a bottle for all eight feedings in order to come home. I think I foresee a singularly tired Amy in our near future!
wow, he is looking good. i can't wait to squeeze him (not to hard, i know, he's little).
ReplyDeleteHi Amy and Scott,
ReplyDeleteThis is Kellen's Mom (Natalie) who is Hale's neighbor in the NICU. I saw you had a blog and wanted to check it out. It is so good to hear your experience since we are just starting out on this new adventure. I hope we will be able to talk and share premie baby advice since it sounds like you got this whole thing down! It was very nice meeting you the other day and I am sure we will see a lot of each other! I hope you don't mind me looking at your blog and feel free to check mine out: www.fordandco.blogspot.com. Take Care and be sure to say hi to Kellen next time you are in!!
-Natalie Ford
Hale is adorable and I really enjoy the pictures of you all together. It's amazing how much he is growing - what a strong little guy! I showed "Three" to my class last week - they loved it. You guys are amazing. -Amy M.
ReplyDeleteBeautiful pictures!!! You both have such talent, and how wonderful to be able to use this in your own lives! Congratulations and tons of hugs and kisses!!!
ReplyDeleteBeautiful pictures! You both have such amazing talent and it is so special that you are able to use it in your own lives! Congratulations and tons of hugs and kisses!!! xoxoxo Kenz
ReplyDelete